Sunday, November 13, 2011

Where You Do Not Wish to Go

It occurred to me that I threw out this statement at the beginning of my last post, and never truly unpacked it.

"I don't know that I'm the same person who wrote in June."

Well, I'm still a 50 year old woman, I'm still a pastor, I'm still a mother of two adult-type young people, I'm still in a relationship with my Beloved, still living in the same place, etc, etc.

And I still have an aging father with health concerns.

But now I am his caregiver, in many very tangible ways. For better or for worse, the reversal of roles that is often threatened, resisted, bemoaned between adults and their elderly parents--- it has happened. It is, more or less, complete.

I have made decisions for my dad (with my brother's help, of course) that he was not able to make for himself in the last year.

The week he was in the hospital was probably the most frightening week of my life. I awakened every morning an hour or more before the alarm, my heart racing. "I'm not ready for this" ran through my head on a continuous loop. "If only" was a close second in frequency, though my wise Beloved helped me to stop that in short order.

At the point at which I was told he would need rehab, I knew with complete clarity what had to be done. He needed to be near me. I couldn't imagine him in a rehabilitation facility with no family nearby to stop in daily, to encourage him, to let him know he wasn't alone. My brother agreed, and it was done. One day, in a very lucid moment, even my dad agreed, though the narrative has shifted since for him. He is convinced that he was kidnapped.

I imagine that's exactly how it felt. One day in a life he knew intimately, in a house he'd inhabited for about thirty years, with a view that was etched on his heart, and all his memories encircling him like a blanket. The next, in a completely new place, with, sure, some photos on the wall of children, grandchildren, himself and my mother. But even more than that: with the dramatic loss of ability.  He went from being able to walk (with great difficulty) unassisted, to needing a walker and/ or a wheelchair, and assistance from nurses and aides. He needs to wear a webbed transfer belt whenever he needs to stand and move himself (with help) from one place to another.

"Very truly, I tell you, when you were younger, you used to fasten your own belt and to go wherever you wished. But when you grow old, you will stretch out your hands, and someone else will fasten a belt around you and take you where you do not wish to go.”

So my dad has had to go where he does not wish to go, and so, in total honesty, have I. I now have a host of responsibilities, financial, legal, medical, and moral that perch somewhat uncomfortably on my shoulders. But this is my life now, and this is my role.

I try to see my dad at least every other day. I was going daily, but a good friend (who happens to be the chaplain at the facility where dad is living) told me that it might actually help the transition for me to give dad a day in between. So I do.

The learning curve for me in terms of what my dad's dementia means is steep. I was recently truly shocked to find that a move from one end of a hallway to another end of an adjacent hallway was utterly confusing and anxiety provoking for him. I was also not shocked, but surprised, to learn that he conveys more happiness and contentment with his situation to the staff and other residents than he does to me. The family, it appears, hears the unhappiness. I'm the safe person, and I'm also the person who might be able to help.

I think the biggest change for me, though, has been one of attitude. Before his hospitalization I spent a lot of time feeling very frustrated with my dad, even angry, at his unwillingness to make changes. Once he had his fall, once the clarity came, it's as if I had an attitude transplant. Now, the whole point is, is he ok? Is he being well-cared-for? Is he happy? Or, is his unhappiness something I can help with? Or, perhaps this: Can I at least hear his unhappiness, let him know he has been heard?

In a strange way all this trauma has brought my dad and me closer to one another. I know he no longer considers me a meddling kid who's trying to cramp his style, though I suspect he has discomfort with the role reversal (as have I). But we are both trying, struggling, muddling through, even though life has taken us where neither of us wanted to go.


Robin said...

What dramatic shifts in every dimension of your life, and what challenging new burdens. But how wonderful that your dad has someone who can hear what he says.

Unknown said...

I'm glad you're able to have him so close by, despite all the challenges involved, so you can know his situation and respond to it (again, despite all the challenges).

Processing Counselor said...

I am so sorry you have to go through this. I know how difficult it is, not really because my father was in a coma when he was in a nursing home and in a lot of ways that was easier, but my beloved's father was in a (really bad and placed there by his second wife) nursing home. And that was hard to see.
My thoughts are always with you.

Anonymous said...

I couldn´t stop the tears while reading this post.

I´m in a very similar situation with my mother who has dementia.

IT said...

I havent been here in a while, and I'm sorry to hear this news. I find that it makes the relationship change--it's not mom or dad, not in the same way. They've already left to some extent.

in any case, it appears you aren't blogging here much but wanted to send you warm wishes of the season, etc etc.

IT (blogger from Friends of Jake)

Jess Rehearsal said...

I don't have any experience with what you are dealing with, but I believe the journey of life is similar among us - and I believe suffering is suffering. We all cross similar borders in life. I find your blogging style inspiring. Thank you for sharing!